irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $42KAllows the Foundation to present its Findings to the Medical Community and Promote the Organization.
- #2 $26KPatients, Families, Etc can find valuable information on the web-site referrals, support groups, Articles from Medical Journals, Useful Links, FAQ's.
named programs · 4 · from sources
What they call their work
Associate Specialist in Ophthalmic Oncology
Training and employment opportunity for subspecialty-trained ophthalmologists to treat ocular tumors and orbital diseases at The New York Eye Cancer Center.
Eye Cancer Network
An online platform providing educational resources, support groups, medical journal articles, and referrals for patients, families, and physicians affected by eye cancer.
Fellowship in Ocular Tumor, Orbital Disease and Ophthalmic Radiation Therapy
One-year clinical fellowship at The New York Eye Cancer Center for US-trained ophthalmologists to specialize in ocular oncology and radiation therapy.
International Retinoblastoma Fellowship Program
Offers six-month fellowships to ophthalmologists from underserved countries to train in retinoblastoma treatment, with the expectation they return to establish eye cancer programs in their home countries.
activities · 4 groups
What they do
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Comprehensive Eye Care Access 1 activity
- Building global capacity in eye cancer careTrains eye cancer specialists in underserved countries, sponsors international fellows to attend conferences such as the International Society of Ocular Oncology (ISOO) meeting, and provides travel grants to doctors from countries including India, Canada, Australia, and the US to present research; requires fellows to publish one research study acknowledging Foundation support.
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Vision Research Funding 1 activity
- Funding and administering international ocular oncology fellowshipsFunds 25 six-month retinoblastoma fellowships for candidates from underserved or unserved countries, including stipends for food and lodging, round-trip airfare, and training support; also funded equipment and fellowships for three ocular oncology fellows using $50,000 in funding.
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Cancer Awareness and Education Initiatives 1 activity
- Providing educational and support resources for eye cancer patients and familiesOffers open-access information, referrals, support groups, FAQs, medical journal articles, book recommendations, and patient advocacy services to eye cancer patients, families, and physicians globally through its website and online platforms.
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Biomedical Research and Innovation 1 activity
- Supporting research and data standardization in ocular oncologySupported the development of the AJCC-UICC staging system for eye cancer, published multicenter international studies in peer-reviewed journals, and developed tumor registries to collect data on rare eye tumors.
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financials · form 990 · fy2024
revenue
Total revenue$473K
Contributions & grants$266K56%
Program service revenue$00%
Investment income$207K44%
Other revenue$0
expenses
Total expenses$330K
Program expenses79%
Admin / overhead21%
Fundraising0%
Salaries & benefits$79K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$3.04M
Cash$84K
Investments$2.90M
Liabilities$17K
Net assets$3.02M
Liquid reserves108.8 mo
4 years on record · 2020–2024 · YoY revenue +42.0%
leadership · form 990 part vii · fy2024
Who runs it
board members · 10
- Anne-Marie Montijo — Director
- Beverly Sommer — Trustee
- Dr Paul Finger — Chairman
- Jack B Friedman ESQ — Secretary
- Lynne Shevlin — Director
- Marci Finger — Treasurer
- Maureen De Voe — Director
- Myrna Daniels — Vice President
- Robert Sauerhaft — Director
- Scott Weiner — Director
relationships · 26
Who they work with
- AJCC-UICC Partner — Collaborated on the development of a standard staging system for eye cancer.
- Calle Ophthalmic & Orbit Oncology Center Partner — Hosts a member of the Scientific Advisory Committee and collaborates through expert involvement.
- Centre for Sight Eye Hospital Partner — Hosts a member of the Scientific Advisory Committee and collaborates through expert involvement.
- Dr. Alberto Calle Partner — Serves as a Scientific Board Member and supervising professor for ECF Fellowship programs.
- Dr. Paul T. Finger Partner — Lead reviewer for travel grant applications and primary contact for applicants.
- EyeMelanoma.org Partner — Referred as an additional resource for eye cancer patient support.
- Helmholtz Institute of Ophthalmology Partner — Hosts a member of the Scientific Advisory Committee and collaborates through expert involvement.
- Helsinki University Central Hospital Partner — Hosts a member of the Scientific Advisory Committee and collaborates through expert involvement.
- ISOO conference Partner — Sponsored and funded fellow participation in the ISOO conference.
- International Council of Ophthalmology Partner — Collaborates with The Eye Cancer Foundation to offer retinoblastoma education fellowships.
- King Hussein Cancer Center Partner — Hosts a member of the Scientific Advisory Committee and collaborates through expert involvement.
- MD Anderson Cancer Center Partner — Hosts a member of the Scientific Advisory Committee and collaborates through expert involvement.
- NYC Yankees Partner — Collaborates with The Eye Cancer Foundation on initiatives related to eye cancer awareness or support.
- New York Eye Cancer Center Partner — Hosts fellowship training in ocular tumor, orbital disease and ophthalmic radiation therapy and employs associate specialists in ophthalmic oncology.
- Patient Advocate Foundation Partner — Partner organization providing patient advocacy resources.
- Paul T. Finger, MD Partner — Founder of The Eye Cancer Foundation and established the organization in 1998.
- Princess Margaret Cancer Center Partner — Collaborates with The Eye Cancer Foundation to offer retinoblastoma education fellowships.
- Princess Margaret Cancer Center Partner — Hosts a member of the Scientific Advisory Committee and collaborates through expert involvement.
- St. Erik's Eye Hospital Partner — Hosts a member of the Scientific Advisory Committee and collaborates through expert involvement.
- The James B. Bosley Foundation Funder — Provided $50,000 to fund new equipment and fellowships for The Eye Cancer Foundation.
- The Myrna and John Daniels Family Partner — Collaborates with The Eye Cancer Foundation and The Paul Finger Fund to support patient forums and outreach.
- The New York Eye Cancer Center Partner — Collaborates with The Eye Cancer Foundation by providing specialized eye cancer treatment and referrals.
- The Paul Finger Fund Partner — Partners with The Eye Cancer Foundation and The Myrna and John Daniels Family to support patient initiatives.
- The Victoria Cohen Eye Cancer Charitable Trust Partner — Supports aspiring ocular oncologists through scholarships for fellowships worldwide.
- University Hospital Essen Partner — Hosts a member of the Scientific Advisory Committee and collaborates through expert involvement.
- YouTube Partner — Hosts the organization's official channel for public content distribution.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Global Data Collaboration for Research Advancementmethodology: international data-sharingBy enabling international data-sharing and multicenter collaboration, we accelerate retinoblastoma research because pooled clinical insights improve diagnostic and treatment innovation.
- International Research and Training for Capacity Buildingmethodology: train-and-deployBy training physicians from underserved regions and supporting their research dissemination, we improve global eye cancer care because returning fellows establish local programs and advance clinical knowledge in their home countries.
- Patient-Centered Bio-Psycho-Social Support Modelmethodology: bio-psycho-social care modelBy providing education, peer support, and advocacy, we improve patient outcomes because addressing emotional and informational needs reduces isolation and anxiety, enhancing coping and care engagement.