named programs · 1 · from sources
What they call their work
Common NICU Terms Guide
Provides an educational glossary of neonatal intensive care unit terminology to help families understand medical conditions, treatments, and procedures affecting their infants
activities · 3 groups
What they do
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Adaptive Equipment Provision 2 activities
- Facilitate access to transportation and lodging for NICU familiesProvides metro cards, gas cards, parking passes, and sponsored stays at hotels and Ronald McDonald House locations to help families maintain proximity to their infants in NICUs across the Hudson Valley and upstate New York.
- Provide financial, emotional, and informational support to families of premature and critically ill newborns in NICUsOffers financial assistance, emotional comfort, and access to resources such as curated apps, books, and informational materials to families with infants in neonatal intensive care units across New York, including support for transportation, lodging, and food costs during hospitalization.
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Holiday and Seasonal Essentials Distribution 1 activity
- Distribute care packages and essential supplies to NICU families and graduatesProvides Family Care Kits to parents at the start of their NICU journey and distributes Welcome Home Care Packages upon discharge, containing essential baby items and educational materials to support families during and after hospitalization.
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Hospital and Medical Center Support 1 activity
- Fund medical equipment and infrastructure improvements for NICUsFinances critical medical equipment such as EKG machines and supports quality-of-care improvements in regional NICUs, including at Maria Fareri Children’s Hospital and other partner facilities.
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financials · form 990EZ · fy2023
revenue
Total revenue$4K
Contributions & grants$4K94%
Program service revenue——
Investment income——
Other revenue$232
expenses
Total expenses$91K
Program expenses98%
Admin / overhead2%
Fundraising0%
Salaries & benefits—
Grants paid out$84K
Largest expense lineFacilities
balance sheet
Total assets$0
Cash$87K
Investments$0
Liabilities$0
Net assets$0
Liquid reserves11.5 mo
4 years on record · 2020–2023 · YoY revenue -77.6%
leadership · form 990 part vii · fy2023
Who runs it
board members · 2
- ISAAC ZION — DIRECTOR
- MARVIN SIEGEL — DIRECTOR
relationships · 30
Who they work with
- Albany Medical Center Partner — Provided support to families with infants in the NICU at the Children’s Hospital at Albany Medical Center.
- American Academy of Pediatrics Network — Includes resources published by the American Academy of Pediatrics, such as the book Newborn Intensive Care and the website HealthyChildren.org.
- BabyCenter Partner — Includes BabyCenter.com as a source for information on preemie developmental milestones.
- Bernard & Millie Duker Children’s Hospital at Albany Medical Center Partner — Hospital partner providing Level IV NICU care in northeastern New York
- CarePages Partner — Recommends CarePages as a free tool for NICU parents to update family and friends on their baby’s progress.
- Garnet Health Medical Center Partner — Hospital partner operating a Level II NICU in Middletown, NY
- HealthyChildren.org Network — Directs families to HealthyChildren.org for evidence-based information on preemie development and milestones.
- Hydrocephalus Association Partner — Lists Hydrocephalus Association as a resource for families affected by hydrocephalus.
- Lotsa Helping Hands Partner — Recommends Lotsa Helping Hands as a platform for coordinating volunteer support for families in need, including those with babies in the NICU.
- Maria Fareri Children's Hospital Partner — Supported the Regional Neonatal Intensive Care Unit with medical equipment funding.
- Maria Fareri Children’s Hospital Partner — Hosts multiple Hailey's Hope Foundation programs including Financial Support, Welcome Home Care Packages, and lodging coordination at the Ronald McDonald House.
- Maria Fareri Children’s Hospital Partner — Sponsored weekend stays at a nearby Marriott for families with infants in the NICU at Maria Fareri Children’s Hospital.
- Maria Fareri Children’s Hospital at Westchester Medical Center Partner — Hospital partner providing Level IV NICU care in the Hudson Valley
- Maria Fareri Children’s Hospital at Westchester Medical Center Partner — NICU Parent Mentors from Hailey's Hope Foundation volunteer at this hospital and families are supported in connection with this facility.
- Morgan Stanley Children’s Hospital/NY Presbyterian at Columbia University Medical Center Partner — Hosts the Financial Support Program for NICU families.
- NY Presbyterian-Morgan Stanley Children’s Hospital Partner — Provided metro cards and funds for monthly train tickets to families visiting infants in the NICU at this hospital.
- New York area Neonatal ICUs Partner — Collaborates with Neonatal ICUs in the New York area to support families and improve care quality.
- New York-Presbyterian/Morgan Stanley Children’s Hospital Partner — Hospital partner providing specialized NICU care in New York City
- Orange Regional Medical Center Partner — Hosts Hailey's Hope Foundation programs including Financial Support and Welcome Home Care Packages.
- Preeclampsia Foundation Partner — References Preeclampsia Foundation as a support and information resource for families affected by preeclampsia and HELLP syndrome.
- Preemie Babies 101 Partner — Lists Preemie Babies 101, a blog by Hand to Hold, as a resource for parents of preemies and families experiencing loss.
- RSV Protection Partner — Directs families to RSVProtection.com for information about Respiratory Syncytial Virus and its risks for premature infants.
- Ronald McDonald House Greater Hudson Valley Partner — Partnered to provide nourishment support for NICU families.
- Ronald McDonald House of the Greater Hudson Valley Partner — Provides lodging for families of NICU patients in partnership with Hailey's Hope Foundation at Maria Fareri Children’s Hospital.
- Ronald McDonald House of the Greater Hudson Valley Partner — Support partner providing low-cost housing for NICU families near Maria Fareri Children’s Hospital
- Synagis Government — Provides information about Synagis, an FDA-approved prescription injection for high-risk infants, including preemies.
- Text4Baby Partner — Lists Text4Baby as a resource for free text messages on prenatal and infant health topics.
- The Children’s Hospital at Albany Medical Center Partner — Hosts Financial Support, Welcome Home Care Packages, and Family Care Kits programs.
- WebMD Partner — References WebMD's Preemies Directory as a comprehensive source on premature infant care and complications.
- Westchester Medical Center Partner — Provided support packages to families with infants in the NICU at this hospital.
strategies · 2
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Family-Centered Support to Improve Infant and Family Outcomesmethodology: family-centered_careBy providing comprehensive financial, emotional, and informational support to families of NICU infants, we improve both family well-being and clinical outcomes for babies, because reducing non-medical stressors enables greater parental engagement, resilience, and advocacy during critical care.
- Peer Support Informed by Lived Experience to Reduce Parental Isolationmethodology: peer_support_based_on_lived_experienceBy leveraging personal lived experience with premature birth and NICU care, we deliver peer-guided support that prevents parental isolation and builds coping capacity, because shared experience creates trust and relatability that enhances engagement and emotional resilience.