named programs · 2 · from sources
What they call their work
Honor Cards
Donation notification program allowing supporters to send personalized cards for occasions like birthdays and holidays, with proceeds benefiting MS research and awareness.
Hyperbaric Oxygen Therapy (HBOT) Research Study
An innovative research initiative exploring the use of HBOT as a treatment for multiple sclerosis, developed in partnership with local health and wellness organizations.
activities · 4 groups
What they do
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Genetic and Neurological Disease Research Funding 2 activities
- Funding MS treatment research under a "Do No Harm" principleFunds research focused on treatments for multiple sclerosis that align with a "Do No Harm" principle, supporting safer medical interventions for individuals with MS.
- Supporting MS patients' access to uncovered therapeutic treatmentsProvides direct support to multiple sclerosis patients seeking therapeutic treatments that are not easily covered by insurance, improving access to care.
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Autoimmune Disease Research Funding 1 activity
- Advancing research to cure multiple sclerosisFocuses on advancing research to find a cure for multiple sclerosis, including through direct research initiatives and collaboration with health organizations.
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Honor and Memorial Recognition Programs 1 activity
- Issuing honor cards for donationsProvides honor cards to recognize donations made in someone's name for occasions such as birthdays, Mother's Day, and holidays, supporting donor engagement and gift-based giving.
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Rare Genetic Disease Research and Advocacy 1 activity
- Public education on multiple sclerosisConducts public education initiatives to increase awareness about multiple sclerosis, including outreach efforts tied to the organization’s founding mission.
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financials · form 990EZ · fy2024
revenue
Total revenue$31K
Contributions & grants$31K100%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$29K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$57K
Cash—
Investments—
Liabilities—
Net assets$39K
4 years on record · 2020–2024 · YoY revenue -10.0%
leadership · form 990 part vii · fy2024
Who runs it
board members · 2
- THOMAS SCOTT BORLAND — TRUSTEE
- TINA PONZINI ZARCONE — TRUSTEE
relationships · 6
Who they work with
- AHRC Suffolk Foundation Partner — Former board member, indicating past organizational collaboration in support of individuals with disabilities.
- Center of Cost Effective Government Partner — Serves on the advisory board, supporting initiatives for efficient public administration.
- Stony Brook Medicine Partner — Collaborates with Stony Brook Medicine, where the development of Hyperbaric Oxygen Therapy (HBOT) for MS was advanced.
- Stony Brook University Medical Center Partner — Collaborates through service on the Medical Center's Development Council and participation in leadership activities.
- The Long Island Museum of American Art, History and Carriages Partner — Serves as a trustee, contributing to governance and institutional direction.
- charitygiftcertificates.org Partner — Partner platform used to facilitate the purchase and distribution of honor cards.
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Do No Harm Treatment Developmentmethodology: do_no_harm_approachBy prioritizing patient safety and minimizing harmful side effects in treatment development, the organization increases the likelihood of sustainable and widely adoptable therapies, because safer treatments improve patient adherence and long-term outcomes.
- Mind-Body-Soul Harmony in Disease Managementmethodology: mind-body-soul_harmonyBy promoting mind-body-soul harmony, the organization seeks to halt MS progression and support eradication, because holistic well-being influences physiological resilience and disease expression.
- Personalized Treatment Developmentmethodology: personalized_treatment_approachBy creating individualized treatment options for MS, the organization aims to improve patient outcomes, because the disease manifests uniquely in each person and requires tailored therapeutic approaches.
- Research-Driven Pathway to Curemethodology: research-drivenBy advancing scientific research as the primary intervention, the organization believes a cure for multiple sclerosis can be achieved, because research generates the evidence, treatments, and breakthroughs necessary to eradicate the disease.