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HUMAN PARATUBERCULOSIS FOUNDATION INC

VICTOR, NY · EIN 815108055 · Form 990EZ · FY2025 · Micro (<$100K) · humanpara.org
revenue
$15K
expenses
$22K
net assets
$33K
employees
mission · from form 990

We believe that a human form of Mycobacterium avium subspecies paratuberculosis (MAP) plays a critical role in Crohnb

profile · synthesized from sources

Research foundation focused on understanding the role of Mycobacterium avium subspecies paratuberculosis (MAP) in Crohn's disease and other chronic immune conditions. Supports scientific research, publishes findings, and educates the public and medical community about MAP's potential zoonotic transmission from livestock to humans. Organizes scientific conferences and promotes evidence-based inquiry into MAP-related diseases.

named programs · 4 · from sources

What they call their work

Joint MAP Testing Study
Collaborative research initiative to develop and validate diagnostic testing methods for MAP infection in humans
MAP Conference Series
Organizes scientific conferences to bring together researchers and clinicians to discuss the latest findings on MAP, including annual meetings in Philadelphia and Berkeley
MAP Research Funding Program
Provides grants to support scientific research on Mycobacterium avium subspecies paratuberculosis (MAP) and its potential role in Crohn's disease and other immune conditions
The MAP Gap Newsletter
Quarterly publication providing updates on MAP research, clinical findings, and foundation activities to researchers, clinicians, and patients
activities · 2 groups

What they do

  • Inflammatory Bowel Disease Research and Support 2 activities
    • Conducting and promoting research on MAP in human disease
      Conducts and promotes scientific research into the potential role of Mycobacterium avium subspecies paratuberculosis (MAP) in Crohn’s disease and other conditions, including publishing findings, issuing calls for research proposals, and reporting detection rates in patient populations.
    • Providing educational information on inflammatory and autoimmune diseases
      Provides public information on the causes, symptoms, treatment options, and clinical course of ulcerative colitis, sarcoidosis, and type 1 diabetes, including details on immune mechanisms, genetic factors, and management strategies.
  • Uncategorized 1 activity
    • Funding MAP sequencing research
      Funds research on Mycobacterium avium subspecies paratuberculosis (MAP) through grants, including supporting Otakaro Pathways' sequencing research.
financials · form 990EZ · fy2025
revenue
Total revenue$15K
Contributions & grants$15K100%
Program service revenue
Investment income
Other revenue
expenses
Total expenses$22K
Program expenses
Admin / overhead
Fundraising
Salaries & benefits
Grants paid out
balance sheet
Total assets$33K
Cash
Investments
Liabilities
Net assets$33K
4 years on record · 2021–2025 · YoY revenue +46.3%
leadership · form 990 part vii · fy2025

Who runs it

board members · 2
  • ILDIKO MEHES — Trustee
  • SHARON COONEY — Trustee
relationships · 7

Who they work with

  • Johne’s Disease Information Center Partner — Collaborates by providing detailed information and resources on Johne's disease, referenced as a key source by the foundation.
  • Otakaro Pathways Partner — Leads global hMAP testing with an innovative diagnostic test; referenced as a key lab in hMAP detection.
  • Otakaro Pathways Partner — Receives funding from Human Para for sequencing research on MAP.
  • Paratuberculosis Awareness and Research Association Partner — Provides up-to-date information and research on paratuberculosis, cited as a resource by the foundation.
  • RedHill Biopharma Partner — Collaborated on the clinical development and trial of RHB-104 for multiple sclerosis.
  • RedHill Biopharma Partner — Conducts clinical trials on AMAT therapy for Crohn's disease and multiple sclerosis, referenced as part of ongoing research efforts.
  • University of Central Florida Partner — Hosts Prof. Saleh Naser's research which successfully cultured MAP from Crohn’s disease patients.
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Combination Therapy Targeting MAP and Immune Modulation
    methodology: combination_therapy_targeting_map
    By investigating combination therapies that target both Mycobacterium avium subspecies paratuberculosis (MAP) and immune dysfunction, the organization aims to improve clinical outcomes in diseases like MS, because dual-pathway intervention addresses both potential infectious etiology and the resulting immune dysregulation.
  • Immune-Mediated Disease Model with Environmental Triggers
    methodology: immune-mediated_disease_model
    By studying chronic immune diseases like sarcoidosis, type 1 diabetes, and ulcerative colitis as conditions arising from genetic susceptibility combined with environmental triggers such as infection, the organization identifies modifiable causal factors, because this model enables prevention and intervention strategies that go beyond symptom management to address root causes.
  • MAP Causality Hypothesis-Driven Research
    methodology: etiologic_research_hypothesis
    By investigating the hypothesis that Mycobacterium avium subspecies paratuberculosis (MAP) infection is a causative factor in Crohn’s disease and other immune-mediated conditions, the organization advances understanding and treatment development, because establishing etiology enables targeted interventions and redirects clinical focus toward infectious triggers in chronic immune diseases.
  • Mechanistic and Molecular Detection Innovation
    methodology: molecular_detection
    By using PCR-based DNA testing to detect cell-wall deficient MAP in humans, the organization improves diagnostic accuracy and research validity, because traditional methods fail to identify MAP due to its atypical microbiological characteristics, and molecular detection enables more reliable investigation of its role in disease.