named programs · 1 · from sources
What they call their work
Find a Specialist
Directory and referral service helping women with IBD locate gastroenterologists and IBD specialists experienced in fertility and pregnancy management.
activities · 3 groups
What they do
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Inflammatory Bowel Disease Research and Support 2 activities
- Disseminating information on IBD-related researchProvides information about ongoing research related to inflammatory bowel disease, particularly as it pertains to fertility, pregnancy, and postpartum outcomes.
- Providing educational resources on IBD and reproductive healthOffers comprehensive educational materials for women with inflammatory bowel disease (IBD) covering fertility, family planning, pregnancy, postpartum care, and newborn health. Topics include disease management during pregnancy, medication safety, nutrition, cryopreservation, hereditary risks, and coordination with specialists.
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Healthcare Provider Directories and Clinical Support Services 1 activity
- Facilitating access to specialized care for IBD patientsOperates a directory and provides tools to help individuals with IBD locate and prepare for appointments with specialists in maternal-fetal medicine, reproductive endocrinology, and IBD care, particularly for those planning pregnancy or managing high-risk pregnancies.
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Perinatal Support Services 1 activity
- Offering peer support for individuals with IBD during pregnancyProvides access to support groups for people with IBD who are planning pregnancy or navigating pregnancy and postpartum stages, fostering community and shared experiences.
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financials · form 990EZ · fy2024
revenue
Total revenue$40K
Contributions & grants$40K100%
Program service revenue——
Investment income——
Other revenue$3
expenses
Total expenses$96K
Program expenses26%
Admin / overhead74%
Fundraising0%
Salaries & benefits—
Grants paid out—
Largest expense lineCompensation
balance sheet
Total assets$185K
Cash$241K
Investments$0
Liabilities$0
Net assets$185K
Liquid reserves30.0 mo
5 years on record · 2020–2024 · YoY revenue -83.3%
leadership · form 990 part vii · fy2024
Who runs it
board members · 7
- JAMI KINNUCAN MD — DIRECTOR/SECRETARY
- MARIA ABREU MD — DIRECTOR
- MARLA DUBINKSY MD — DIRECTOR/PRESIDENT
- SONIA FREIDMAN MD — DIRECTOR
- SUNANDA KANE MD — DIRECTOR
- UMA MAHADEVAN MD — DIRECTOR
- ZOE GOTTLIEB MD — DIRECTOR/VICE PRESIDENT
relationships · 39
Who they work with
- Advent Health Orlando Partner — Collaborates with IBD specialists at Advent Health Orlando for pregnancy-related IBD care.
- American College of Gastroenterology Network — President (Dr. Sunanda Kane), and multiple officers hold leadership positions
- American Gastroenterological Association Network — President (Dr. Maria Abreu), and multiple leadership and committee roles held by officers
- Brigham and Women’s Hospital Partner — Former faculty member and Professor of Medicine at Harvard Medical School
- Cedars-Sinai Medical Center Partner — Works with IBD specialists at Cedars-Sinai Medical Center who provide care for pregnant patients with IBD.
- Columbia University Irving Medical Center Partner — Partners with IBD specialists at Columbia University for reproductive care in IBD patients.
- Crohn's & Colitis Foundation Network — Active member and former Chair of the National Patient Education Committee
- Find A Doctor Partner — Collaborates to connect patients with qualified physicians for IBD management during pregnancy.
- Johns Hopkins School of Medicine Partner — Engages with IBD specialists at Johns Hopkins School of Medicine for expert management of IBD in pregnancy.
- Locate a Specialist Partner — Partners with medical specialists to connect patients with care providers experienced in IBD and pregnancy.
- Massachusetts General Hospital Partner — Partners with specialists at MGH Crohn's and Colitis Center for reproductive IBD care.
- Mayo Clinic Partner — Collaborates with IBD specialists at Mayo Clinic who are experienced in managing IBD during pregnancy.
- Mayo Clinic Partner — Senior Associate Consultant in the Division of Gastroenterology and Hepatology and Director of the IBD Intestinal Ultrasound Program at Mayo Clinic Florida
- Mayo Clinic Florida Partner — Works with IBD specialists at Mayo Clinic Florida who have expertise in managing IBD during pregnancy.
- Mount Sinai Partner — References the Mount Sinai WISDOM study focused on female fertility and IBD as an ongoing research effort.
- Mount Sinai Hospital Partner — Collaborates with IBD specialists at Mount Sinai Hospital for pregnancy and family planning support in IBD.
- Mount Sinai Kravis Children’s Hospital Partner — Co-Director of the Susan and Leonard Feinstein IBD Clinical Center and Chief of Pediatric Gastroenterology and Nutrition
- Penn State Milton S. Hershey Medical Center Partner — Partners with IBD specialists at Penn State for comprehensive pregnancy and IBD care.
- Tufts Medical Center Partner — Chief of Gastroenterology
- Tufts Medical Center Partner — Collaborates with IBD specialists at Tufts Medical Center for pregnancy and fertility-related IBD management.
- Tulane University Partner — Collaborates with IBD specialists at Tulane University School of Medicine for care of pregnant patients with IBD.
- UC Health Partner — Works with IBD specialists at UC Health for reproductive management in IBD patients.
- UCLA Partner — Partners with IBD specialists at UCLA’s Vatche and Tamar Manoukian Division of Digestive Disease for pregnancy-related IBD care.
- University of California, San Francisco Partner — Director of the UCSF Center for Colitis and Crohn's Disease and Lynne and Marc Benioff Professor of Gastroenterology
- University of Florida Health Partner — Partners with IBD specialists at University of Florida Health for managing IBD in pregnancy.
- University of Miami Partner — Works with IBD specialists at the University of Miami’s Crohn’s and Colitis Center for pregnancy care.
- University of Miami Miller School of Medicine Partner — Director of the Crohn’s & Colitis Center
- University of Minnesota Partner — Collaborates with IBD specialists at Mayo Clinic Rochester, affiliated with University of Minnesota, for reproductive IBD care.
- University of North Carolina at Chapel Hill Partner — Partners with IBD specialists at UNC Chapel Hill for managing IBD during pregnancy.
- University of Pennsylvania Partner — Collaborates with IBD specialists at the University of Pennsylvania for reproductive IBD support.
+ 9 more
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Integrated Reproductive-IBD Care Modelmethodology: integrated_reproductive_ibd_careBy integrating IBD disease management into reproductive healthcare—including preconception optimization, medication safety, fertility preservation, and flare prevention—the organization reduces pregnancy risks and improves outcomes because coordinated clinical planning addresses both maternal and fetal health proactively.
- Life-Stage Continuum Caremethodology: life-stage_continuum_careBy addressing IBD care needs across key reproductive life stages—from preconception through postpartum and beyond—the organization improves health outcomes because tailored support during critical transitions increases preparedness, adherence, and long-term well-being.
- Multidisciplinary Care for Maternal-Fetal Health Balancemethodology: multidisciplinary_care_teamBy deploying a multidisciplinary team of OB/GYNs, gastroenterologists, surgeons, and nutritionists, the organization optimizes maternal and fetal outcomes because coordinated specialty care ensures that IBD-related risks during pregnancy are managed holistically and clinically.
- Shared Decision-Making with Patient-Centered Communicationmethodology: shared_decision_makingBy fostering open communication and shared decision-making between patients and providers, the organization improves reproductive and pregnancy outcomes because informed, emotionally supported patients are more likely to engage in care planning and adhere to recommended regimens.