named programs · 3 · from sources
What they call their work
Awareness and Education Program
Conducts outreach and education to increase public and institutional awareness about Duchenne Muscular Dystrophy and caregiving challenges
Family Support Network
Builds a community among families caring for children with Duchenne Muscular Dystrophy to reduce isolation and share resources
Healthcare Navigation Assistance
Helps families understand and access services within complex healthcare systems for children with physical disabilities
activities · 3 groups
What they do
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Rare Genetic Disease Research and Advocacy 1 activity
- Advocacy and awareness for Duchenne muscular dystrophy and physical disabilitiesRaises public and systemic awareness about Duchenne muscular dystrophy and physical disabilities through education and support initiatives.
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Patient and Family Support Services 1 activity
- Navigation and advocacy support for healthcare service systemsAssists families in navigating and influencing service systems to meet the specialized healthcare needs of minors with Duchenne muscular dystrophy and physical disabilities.
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Familial Support for Rare Genetic Conditions 1 activity
- Support network for families of minors with Duchenne muscular dystrophy and physical disabilitiesBuilds a supportive network to reduce isolation and empower caregivers of minors with Duchenne muscular dystrophy and physical disabilities, providing connection and mutual support.
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financials · form 990EZ · fy2024
revenue
Total revenue$0
Contributions & grants$0—
Program service revenue$0—
Investment income$0—
Other revenue—
expenses
Total expenses$670
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$49
Cash—
Investments—
Liabilities—
Net assets$49
5 years on record · 2020–2024
leadership · form 990 part vii · fy2024
Who runs it
board members · 1
- CHRIS DUMSER — DIRECTOR
strategies · 2
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Education and Advocacy Drives Systemic Changemethodology: education_and_advocacyBy educating the public and supporting affected families, the organization drives systemic change and improves service access, because awareness reduces stigma and equips communities and policymakers to respond effectively.
- Peer Support Network Reduces Isolationmethodology: peer_support_networkBy building a supportive network of families, the organization reduces caregiver isolation and increases empowerment, because shared lived experience fosters trust, collective advocacy, and sustained engagement.