named programs · 4 · from sources
What they call their work
EQUAL Grant Advocacy
Assists resident councils in accessing and allocating the NYS DOH EQUAL Grant for resident-driven improvements such as recreational equipment, furniture, and community outings.
Food Service Improvement Initiative
Advocates for higher quality, nutritious, and culturally appropriate meals in adult care facilities, including fresh produce and dietary accommodations.
Resident Council Organizing
Supports the formation and training of resident councils in adult care facilities to promote self-governance, rights education, and collective advocacy.
Speak Out in Albany
Annual advocacy event where adult care facility residents testify before state officials on issues including food quality, privacy, case management, and access to the EQUAL Grant.
activities · 5 groups
What they do
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Senior Advocacy and Civic Engagement 3 activities
- Distributing educational materials and publications for residentsDevelops and distributes toolkits, guides, and newsletters—including the "Adult Home Resident Council Toolkit," "CIAD Reporting Violence Guide," and quarterly publication "The Resident Voice"—to educate and empower adult care facility residents about their rights and resources.
- Hosting annual Albany Speak-Out event for resident advocacyOrganizes an annual Adult Home Resident Speak-Out event in Albany where residents share lived experiences with policymakers, raise concerns, and propose solutions to improve conditions in adult care facilities.
- Organizing resident councils and leadership development in adult care facilitiesOrganizes adult care facility residents into resident councils, provides leadership training, and supports resident leaders to advocate for their rights and participate in facility and policy decisions. Offers ongoing support and resources to strengthen resident-led governance and self-advocacy.
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Self-Sufficiency Empowerment Workshops 2 activities
- Facilitating EQUAL Grant processes and financial empowermentEducates residents on the EQUAL Grant program and supports them in negotiating with facility administrators to access funding for recreational activities, trips, special events, and capital improvements such as new furniture and kitchenettes.
- Providing independence and self-advocacy training for residentsOffers structured workshops, including the nine-session “Taking Control: A Guide to Independence and Decision Making,” to build personal independence, decision-making, and self-advocacy skills among adult care facility residents. Delivered through peer-led education methods in small groups.
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Long-Term Care Advocacy & Provider Support 1 activity
- Operating a peer advocate program and support lineRuns a peer advocate program staffed by former adult care facility residents who provide emotional support, information, and resource connection via a toll-free support line. Provides individual advocacy to help current residents resolve complaints and access housing, transportation, mental health services, and financial management support.
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Comprehensive Care Management Services 1 activity
- Supporting resident transitions to independent and supportive housingProvides long-term individualized support to help adult care facility residents transition to independent or supportive housing, including navigating legal settlements like O’Toole v. Cuomo. Employs some formerly supported residents as peer advocates after successful transitions.
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Uncategorized 3 activities
- Advancing policy change through resident-led advocacy campaignsConvenes Policy Committee meetings with resident leaders to develop legislative priorities and advocacy strategies. Supports lobbying efforts with city and state officials to advance resident-driven reforms, including securing air conditioning in rooms, increasing personal needs allowances, and mandating demographic data reporting to address racial inequities.
- Conducting media and film-based capacity building for residentsTrains adult care facility residents to produce documentary and public education films using professional media equipment and editing software, enhancing their communication, advocacy, and technical skills.
- Conducting research to inform advocacy and policyCommissioned a report on the EQUAL Program in partnership with the Samuels Group to evaluate and strengthen resident benefit funding mechanisms in adult care facilities.
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financials · form 990 · fy2023
revenue
Total revenue$398K
Contributions & grants$396K99%
Program service revenue$00%
Investment income$2K0%
Other revenue$103
expenses
Total expenses$419K
Program expenses97%
Admin / overhead3%
Fundraising0%
Salaries & benefits$350K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$232K
Cash$232K
Investments$0
Liabilities$25K
Net assets$207K
Liquid reserves6.6 mo
5 years on record · 2019–2023 · YoY revenue -7.0%
leadership · form 990 part vii · fy2023
Who runs it
paid leadership · 2
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| GEOFF LIEBERMAN | EXECUTIVE DIRECTOR END DATE 8/31/24 | 50 | $51K |
| THERESA YOUNG | EXECUTIVE DIRECTOR START DATE 8/12/2024 | 50 | $16K |
board members · 5
- ANN WYATT — SECRETARY
- CRISTY PARQUE — TREASURER
- GARY LEVIN — VICE-PRESIDENT
- ROBERT ROSENBERG — PRESIDENT
- SYLVIA PAOLUCCI — MEMBER
relationships · 25
Who they work with
- Disability Advocates, Inc. Partner — Legal partner in ADA litigation and advocacy efforts to deinstitutionalize adult home residents.
- Food Committees Partner — Partners with Food Committees in adult care facilities to address food-related concerns and improve quality of life.
- Justice in Aging Network — CIAD leader served on the Board of Justice in Aging (formerly National Senior Citizens’ Law Center), indicating organizational affiliation and shared advocacy goals.
- Long Term Care Community Coalition Network — Partner organization whose website hosts nursing home resources referenced by CIAD.
- MFJ Partner — Partnered with MFJ to support resident rights education at Sanford Home for Adults.
- MFY Legal Services Partner — Legal partner in lawsuit against New York State for violating the Americans with Disabilities Act.
- Manhattan Neighborhood Network Partner — Provided training in producing and editing through its Community Media Program for CIAD's media project.
- Mental Health Association of NYS Coalition — Member of the New York State Coalition of Adult Home Reform alongside CIAD.
- Mobilization For Justice Partner — Co-conducts residents' rights training sessions for adult home residents.
- Mobilization For Justice Partner — Collaborates with residents to file complaints and provide advocacy support.
- Mobilization for Justice Partner — Collaborated with CIAD on Residents’ Rights Training for adult home residents.
- Mobilization for Justice Partner — Provides legal resources in collaboration with CIAD for adult home residents.
- NYC Long-Term Care Ombudsman Program Partner — Provides contact resources for long-term care support in New York City boroughs.
- NYS DOH Government — Collaborates with the New York State Department of Health to support resident advocacy and regulatory compliance.
- National Consumer Voice Network — CIAD leader served on the Board of the National Consumer Voice (formerly NCCNHR), indicating organizational affiliation and shared advocacy goals.
- New York Community Trust Funder — Funded the resident media training and documentary production project.
- New York State Coalition for Adult Home Reform Coalition — Coalition co-led by CIAD and partner organizations to advocate for systemic reform of adult homes.
- New York State Department of Health Government — Collaborates on resident rights information related to annual inspections and complaint reporting.
- New York State Department of Health Government — Collaborates with CIAD on adult home inspection reform and resident education initiatives.
- One Brooklyn Health Partner — Engaged in advocacy efforts with One Brooklyn Health to secure case management and personal care services for residents.
- Resident Councils Partner — Collaborates with Resident Councils in adult care facilities to support resident leadership and advocacy.
- Samuels Group Partner — Partnered with CIAD to produce a report on the EQUAL Program.
- Schuyler Center for Analysis and Advocacy Coalition — Co-founded and co-led the New York State Coalition of Adult Home Reform with CIAD.
- State and city government departments Government — Collaborates with state and city government departments responsible for oversight and policy implementation in Adult Care Facilities.
- government leaders Partner — Collaborates with government leaders to advocate for improvements in adult care facilities.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Peer-Led Advocacy and Skill Buildingmethodology: peer_led_advocacyBy using peer advocates and trainers who share lived experience of institutionalization, the organization increases self-efficacy, trust, and skill adoption among residents because shared identity reduces stigma and strengthens relational learning.
- Resident Councils for Collective Advocacy and Decision-Makingmethodology: resident_council_modelBy establishing and supporting resident-led councils, the organization fosters sustained collective action and democratic participation because structured, peer-governed forums enable residents to set priorities, advocate jointly, and exercise self-determination in both daily life and resource allocation.
- Resident-Led Empowerment Modelmethodology: lived_experience_leadershipBy centering leadership, governance, and advocacy roles within current and former institutionalized residents, the organization produces systemic change and improved living conditions because lived experience builds trust, increases engagement, and ensures that solutions are grounded in actual community needs.
- Rights-Based Education and Self-Advocacy Trainingmethodology: rights_based_empowermentBy educating residents on their legal rights and training them in self-advocacy, the organization increases personal agency and collective power because knowledge of rights enables individuals to challenge injustices and engage effectively with regulators and facility operators.
- Story-Based and Evidence-Based Policy Advocacymethodology: story_based_advocacyBy amplifying resident voices through personal storytelling and structured documentation, the organization influences legislation and regulatory change because emotional resonance combined with verifiable data strengthens credibility and compels policymakers to act.