named programs · 3 · from sources
What they call their work
Freedom of Information Act (FOIA) Litigation
Conducts legal actions to obtain and release government records related to HIV prevention, including settlement agreements and research and development agreements between the U.S. government and pharmaceutical companies.
National PrEP Program Advocacy
Advocates for the establishment of a federally funded National PrEP Program to expand access to HIV pre-exposure prophylaxis, particularly for underserved communities.
Public Education and Policy Outreach
Educates the public and government officials on legal and medical policies related to HIV prevention, emphasizing the need for equitable access and protection of taxpayer-funded research.
activities · 4 groups
What they do
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Healthcare Policy Advocacy 6 activities
- Advocacy for a National PrEP ProgramAdvocates for the establishment of a federally-funded National PrEP Program to improve access to HIV prevention medication for uninsured and underinsured populations, including through congressional engagement, public campaigns, and successful advocacy that contributed to securing $7 million in CDC pilot funding and influenced federal budget allocations.
- Advocacy to protect and increase federal HIV fundingAdvocates against proposed cuts to federal HIV prevention funding, successfully mobilizing over 150 organizations and securing congressional support to avert $767 million in cuts, while also advocating for sustained increases in CDC funding for equitable PrEP access.
- Corporate accountability and drug pricing advocacyAdvocates for fair pricing of HIV prevention medications by challenging corporate practices and government agreements, including demanding that PrEP pills be priced based on manufacturing cost plus reasonable profit and holding pharmaceutical companies accountable through congressional hearings and public campaigns.
- Media engagement and public awareness campaignsCollaborates with journalists and produces media coverage in major outlets to highlight disparities in healthcare access and advocate for policy change, including through high-profile campaigns such as #SaveHIVFunding and public education efforts around drug pricing and vaccine distribution.
- Policy analysis and research on PrEP accessConducts policy analysis and produces reports on the public health impacts of government inaction, corporate practices, and legal decisions related to PrEP access, including collaboration with NYU Law School on a user’s guide for government patent use to lower drug prices.
- Public and government education on HIV prevention policyConducts education campaigns for the public and government officials on legal and medical policies affecting HIV prevention access, including through the release of government records, white papers, and media engagement to inform policy debates and budget decisions.
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Constitutional and Government Accountability Litigation 1 activity
- Legal advocacy and litigation for HIV prevention accessFiles lawsuits and Freedom of Information Act (FOIA) litigation to compel federal agencies to disclose agreements related to HIV prevention research and policy, including litigation that led to the release of the M-CRADA in United States v. Gilead and ongoing legal pressure to uphold accountability in HIV funding and drug pricing.
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HIV/AIDS Prevention and Support Services 1 activity
- Mobilizing PrEP users through the PrEP Users’ UnionOrganizes and mobilizes current and former PrEP users through the #PrEPSaves PrEP Users’ Union, launched in 2023–2024, to center their voices in policy discussions, media outreach, and advocacy efforts aimed at expanding equitable access to PrEP.
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Public Awareness and Educational Outreach 1 activity
- Organizing national and community advocacy eventsOrganizes and promotes National HIV Prevention Day through toolkits and downloadable materials, and hosts community forums and virtual events—including protests at the International AIDS Conference and Capitol press conferences—to mobilize public action and media attention around HIV funding and access issues.
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financials · form 990 · fy2024
revenue
Total revenue$873K
Contributions & grants$873K100%
Program service revenue$00%
Investment income$00%
Other revenue$0
expenses
Total expenses$530K
Program expenses65%
Admin / overhead30%
Fundraising5%
Salaries & benefits$281K
Grants paid out$8K
Largest expense lineCompensation
balance sheet
Total assets$346K
Cash$344K
Investments$0
Liabilities$33K
Net assets$313K
Liquid reserves7.8 mo
5 years on record · 2020–2024 · YoY revenue +50.7%
leadership · form 990 part vii · fy2024
Who runs it
paid leadership · 2
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| JEREMIAH JOHNSON | EXECUTIVE DIRECTOR | 35 | $140K |
| MICHAEL CHANCLEY | COMMUNICATIONS & MOBILIZATION MANAGER | 35 | $110K |
board members · 6
- JIRAIR RATEVOSIAN — DIRECTOR
- MILTON RODRIGUEZ-PADILLA — DIRECTOR
- MOISES AGOSTO-ROSARIO — CO-CHAIR & SECRETARY
- MONICA HAHN — DIRECTOR
- PETER STALEY — CHAIR
- TIM HORN — CO-CHAIR & TREASURER
relationships · 29
Who they work with
- CNN Partner — Partnered with PrEP4All to produce media coverage on public health inequities.
- Centers for Disease Control & Prevention Government — Advocated for CDC to establish National PrEP Program pilots
- Centers for Disease Control and Prevention Government — Federal agency involved in the undisclosed M-CRADA and subject of FOIA lawsuit by PrEP4All
- Centers for Disease Control and Prevention Government — Federal agency whose HIV prevention funding decisions are being monitored and challenged by PrEP4All.
- Centers for Disease Control and Prevention Government — Referenced in advocacy efforts regarding CDC-held patents foundational to HIV prevention medications.
- Community members Partner — Collaborates with community members to create policy solutions for HIV prevention access.
- Department of Health & Human Services Government — Engaged in advocacy efforts related to HHS's role in United States v. Gilead
- Department of Justice Government — Engaged in advocacy efforts related to DOJ's role in United States v. Gilead
- Department of Justice Government — Federal agency sued by PrEP4All to compel release of a secret HIV prevention agreement
- Gilead Sciences Partner — Engaged in legal and policy advocacy concerning Gilead Sciences' patent agreement with the U.S. government over HIV prevention drugs.
- Medicins Sans Frontieres Partner — Global health organization whose advocacy efforts around PrEP access are supported by PrEP4All.
- NBC News Partner — Featured PrEP4All's activism and analysis on healthcare access in news coverage.
- NPR Partner — Collaborated with PrEP4All on reporting about inequitable access to PrEP and pandemic responses.
- NYU Law School Partner — Collaborated with PrEP4All to publish a user’s guide on government patent use for lowering drug prices.
- NYU Law Science, Health & Information Clinic Partner — Provides pro bono legal representation for PrEP4All in its FOIA litigation
- NYU Law Science, Health & Information Clinic Partner — Provides pro bono legal support to PrEP4All
- NYU Law’s Engelberg Center on Innovation Law & Policy Partner — Cosponsored a community forum on HIV care and prevention with candidates for NY-12 Congressional District.
- National Institutes of Health Government — Federal agency involved in the undisclosed M-CRADA and subject of FOIA lawsuit by PrEP4All
- PEPFAR Government — U.S. global HIV initiative whose funding reductions are being opposed by PrEP4All.
- PrEP Users’ Union Partner — PrEP4All initiative to mobilize current and former PrEP users for policy advocacy and media engagement.
- PrEP4All Network — Central organizing entity for National HIV Prevention Day, encouraging others to tag them and use shared hashtags to build collective impact.
- Public health experts Partner — Collaborates with public health experts to develop policy solutions for HIV prevention access.
- Save HIV Funding Campaign Partner — Cosponsored a community forum on HIV care and prevention with candidates for NY-12 Congressional District.
- The Body Partner — Published work by or about PrEP4All’s advocacy and analysis on HIV prevention and healthcare access.
- The New York Times Partner — Collaborates with PrEP4All to publish reports on healthcare access disparities.
- The Washington Post Partner — Published investigative reports co-developed with PrEP4All on healthcare access issues.
- U.S. Department of Health and Human Services Government — Federal agency sued by PrEP4All to compel release of a secret HIV prevention agreement
- Yale Law School Partner — Collaborated with PrEP4All in calling for CDC to use its patents for PrEP
- amfAR Partner — Research and advocacy organization whose findings on clinic closures are cited by PrEP4All in advocacy work.
strategies · 3
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Community-Led Advocacy with Lived Experiencemethodology: community-led-advocacyBy organizing PrEP users into collective bodies like the PrEP Users’ Union and centering community voices in policy development, the organization increases advocacy legitimacy and impact because lived experience strengthens the moral and practical authority of reform efforts.
- Integrated Direct Action and Policy Advocacymethodology: direct_action_advocacyBy combining direct action, media engagement, legal advocacy, and policy education, the organization creates pressure for systemic change because multifaceted tactics rooted in activist traditions like ACT UP generate visibility, accountability, and political momentum that single-issue lobbying cannot.
- Universal Access Model for HIV PrEPmethodology: universal_accessBy advocating for a national, federally funded PrEP program, the organization seeks to eliminate cost barriers and systemic inequities in access, because universal access regardless of race, gender, socioeconomic status, or geography is essential to ending the HIV epidemic.