named programs · 2 · from sources
What they call their work
Fragile X Awareness Initiative
Conducts outreach and education efforts to increase public and medical community awareness of Fragile X, including new treatments and technological developments
Fragile X Family Support Program
Provides emotional and informational support to parents of children diagnosed with Fragile X syndrome through counseling, resource sharing, and community events
activities · 1 group
What they do
-
Familial Support for Rare Genetic Conditions 1 activity
- Support and awareness for families affected by Fragile X syndromeProvides support services and promotes public awareness for families with children diagnosed with Fragile X syndrome.
-
financials · form 990EZ · fy2024
revenue
Total revenue$15K
Contributions & grants$15K96%
Program service revenue——
Investment income$5714%
Other revenue—
expenses
Total expenses$478
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$54K
Cash—
Investments—
Liabilities—
Net assets$54K
5 years on record · 2020–2024 · YoY revenue -57.4%