named programs · 3 · from sources
What they call their work
Advocacy for Inclusion
Promotes full inclusion of individuals with Down syndrome in educational and community settings, supporting families in navigating school systems and advocating for rights.
Community Awareness Initiatives
Raises public awareness about Down syndrome through media engagement, modeling opportunities, and public events that highlight abilities and achievements.
Family Support and Connection
Connects families of individuals with Down syndrome through shared stories, emotional support, and community building to reduce isolation and promote acceptance.
activities · 3 groups
What they do
-
Disability Rights Advocacy & Self-Advocacy Empowerment 1 activity
- Conducts advocacy and awareness campaigns for Down syndrome inclusionRuns community awareness initiatives, advocates for increased visibility of children with disabilities in national media, and organizes an annual 63-mile bike ride in August to raise awareness and support for individuals with Down syndrome.
-
-
Fundraising and Financial Support for IDD Services 1 activity
- Provides financial assistance and referrals for medical, educational, and therapeutic needsOffers financial aid for medical needs and scholarships, organizes fundraising events, and provides referrals to therapists and service agencies for individuals with Down syndrome in Central New York.
-
-
Familial Support for Rare Genetic Conditions 1 activity
- Provides peer and family support programs for individuals with Down syndrome and their familiesOffers peer support, connection opportunities, and volunteer assistance during IEP meetings for families of children with Down syndrome. Distributes prenatal information packages and facilitates day-long experiences with member families to support expectant parents. Serves Central New York, with specific programming for school-age children (ages 5–12), teenagers, and adults.
-
financials · form 990EZ · fy2024
revenue
Total revenue$29K
Contributions & grants$17K61%
Program service revenue$10K36%
Investment income$8063%
Other revenue—
expenses
Total expenses$38K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$51K
Cash—
Investments—
Liabilities—
Net assets$51K
5 years on record · 2020–2024 · YoY revenue -2.4%
leadership · form 990 part vii · fy2024
Who runs it
board members · 2
- ALLISON BISHOP — DIRECTOR
- LUKE RADEL — DIRECTOR
relationships · 21
Who they work with
- Brody Savicki Foundation, Inc. Partner — Collaborates on awareness and support initiatives for individuals with Down syndrome.
- Brody's Buddy Ride Partner — Partner organization that hosts an annual bike ride to raise awareness for Down syndrome and support local families
- Cayuga County Department of Health Government — Provides contact information for Early Intervention services in Cayuga County.
- Facebook Partner — Uses Facebook as a platform to share updates and engage with the community.
- Herkimer College Partner — Carrie Bergeron, a member of the 21 Club, was inducted into the Herkimer College Alumni Hall of Honor.
- Herkimer County Department of Health Government — Provides contact information for Early Intervention services in Herkimer County.
- Inclusive Schooling Partner — Collaborates with or references the work of Inclusive Schooling, as indicated by the citation of Dr. Julie Causton and her organization.
- Instagram Partner — Engages with audiences through Instagram to promote the organization's mission.
- Journey of Hearts Partner — Partner organization hosting the "Welcome to Holland" resource for families.
- Learning Disability Association of the M Partner — Partner organization providing tutoring scholarship resources for children with learning disabilities.
- Lettercase Partner — Partner organization providing resources for prenatal diagnosis of Down syndrome.
- Lewis County Department of Health Government — Provides contact information for Early Intervention services in Lewis County.
- Madison County Department of Health Government — Provides contact information for Early Intervention services in Madison County.
- National Down Syndrome Congress Network — Member organization providing programs and resources for new and expectant parents.
- Oneida County Department of Health Government — Provides contact information for Early Intervention services in Oneida County.
- Onondaga County Department of Health Government — Provides contact information for Early Intervention services in Onondaga County.
- Otsego County Department of Health Government — Provides contact information for Early Intervention services in Otsego County.
- Regional Center for Independent Living (RCIL) Partner — Collaborates to provide access to tutoring scholarship resources for children with disabilities.
- Special Olympics New York - Central Region Partner — Partner organization offering sports and inclusion opportunities for individuals with intellectual disabilities.
- YouTube Partner — Utilizes YouTube to distribute video content related to the organization's activities.
- mrsradel@yahoo.com Partner — Contact point for expectant parents seeking information and support
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Full Inclusion Education Philosophymethodology: inclusive_educationBy advocating for and supporting full inclusion of children with Down syndrome in general education classrooms, the organization promotes mutual social and academic development, because integration fosters equity and challenges systemic segregation.
- Home-Based Early Intervention Deliverymethodology: home-based service deliveryBy delivering therapy and special education services directly in homes or daycare settings, the organization increases accessibility and consistency of care, because removing logistical barriers improves treatment adherence and developmental outcomes.
- Normalization and High-Expectations Frameworkmethodology: high-expectations-and-normalizationBy emphasizing shared humanity and setting high expectations for individuals with Down syndrome, the organization drives better developmental and social outcomes, because belief in potential unlocks opportunity and reduces stigma.
- Peer-Led Family Support Modelmethodology: peer_supportBy connecting families through peer support grounded in lived experience, the organization builds trust and emotional resilience, leading to stronger family engagement and sustained participation in services.