irs program accomplishments · form 990 part iii · fy2024
What they reported doing
- #1 primary $25KResearch collaboration between Harvard STRIPED, the National Alliance of Eating Disorders, and REDC, to study treatment availability across the country. The goal is to publish a paper that will add to the literature, improve collaboration with colleagues and support our policy work.
named programs · 2 · from sources
What they call their work
Eating Disorder Treatment Research Collaboration
Joint research initiative with Harvard STRIPED and the National Alliance of Eating Disorders to study national treatment availability and publish findings to inform policy and clinical practice
Member Survey and Metrics Research
Research program focused on collecting and analyzing data from member organizations to improve treatment standards and collaboration
activities · 6 groups
What they do
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Biomedical Research and Innovation 1 activity
- Conducting collaborative research on eating disorder treatment availability and economicsConducts multi-center and collaborative research with institutions like Harvard STRIPED and the National Alliance of Eating Disorders to study national treatment availability, economic costs of eating disorders, and treatment metrics. This includes publishing peer-reviewed findings such as the STRIPED Report on the social and economic cost of eating disorders in the U.S.
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Research and Scholarly Fellowship Support 1 activity
- Funding and supporting academic research through letters of supportProvides letters of support for research grant proposals submitted by academic peers, facilitating external funding acquisition for studies related to eating disorder treatment and policy.
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Healthcare Policy Advocacy 1 activity
- Hosting Hill Days and patient experience collection for federal advocacyOrganizes annual Hill Days in coordination with EDC Advocacy Day to support member advocacy on Capitol Hill and collects personal stories from individuals about insurance denials for residential eating disorder treatment to inform policy initiatives.
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Outpatient Mental Health Clinic Services 1 activity
- Providing direct outpatient and higher-level eating disorder treatment servicesDelivers a full continuum of direct clinical services including outpatient therapy (1–4 hours/week for 6–18 months), intensive outpatient programs (9–12 hours/week for 4–12 weeks), partial hospitalization (30–60 hours/week for 4–7 weeks), residential care (24/7 support for 25–45 days), and inpatient stabilization (7–21 days) featuring multidisciplinary care teams.
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Professional Field Knowledge Development 1 activity
- Publishing best practices and ethical guidelines for membersDevelops and disseminates professional guidance documents including a Code of Ethics, Marketing Best Practices guidelines, and the Center of Excellence white paper to promote ethical, high-quality care across member organizations.
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Uncategorized 5 activities
- Advocating for standardized levels of care in eating disorder treatmentLeads advocacy efforts to standardize definitions and admission criteria for eating disorder treatment levels of care (Inpatient, Residential, PHP, IOP) to improve clinical assessment and treatment recommendations, including integration of clinical guidelines into accreditation standards used by The Joint Commission and CARF.
- Co-developing and publishing treatment decision-making guidebooksCo-developed and published the guidebook "Choosing Eating Disorder Treatment in the Age of Hybrid Care" to help patients, families, and providers evaluate appropriate treatment settings and levels of care based on individual needs.
- Leading the Standards of Excellence Project (STEP)Launched and leads the Standards of Excellence Project (STEP) to establish patient-centered values, beliefs, and principles for eating disorder treatment programs through evidence-based publications and national consensus-building.
- Setting and enforcing clinical standards for member treatment programsEstablishes and enforces evidence-based standards for comprehensive eating disorder treatment among member organizations, including requirements for multidisciplinary assessments within 72 hours of admission (or one week for PHP), weekly treatment team visits, and accreditation by The Joint Commission or CARF using eating disorder-specific criteria.
- Studying youth eating disorder care availability through collaborationCollaborates with the Alliance for Eating Disorders and clinician-researchers from adolescent medicine departments to research access to and availability of eating disorder care options for youth across the United States.
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financials · form 990 · fy2024
revenue
Total revenue$309K
Contributions & grants$295K96%
Program service revenue$13K4%
Investment income$00%
Other revenue$635
expenses
Total expenses$413K
Program expenses0%
Admin / overhead0%
Fundraising0%
Salaries & benefits$0
Grants paid out$0
Largest expense lineProfessional Fees
balance sheet
Total assets$151K
Cash$151K
Investments$0
Liabilities$0
Net assets$151K
Liquid reserves4.4 mo
3 years on record · 2020–2024 · YoY revenue -10.5%
leadership · form 990 part vii · fy2024
Who runs it
board members · 7
- Anne O'Melia — Director
- Dirk Miller — Director
- Ken Weiner — Director
- Margherita Mascolo — Director
- Melainie Rogers — Director
- Paula Vass — Director
- Vanessa Menaged — Director
relationships · 49
Who they work with
- APA (American Psychological Association) Partner — References APA Guidelines for treating eating disorders as a resource for patients navigating insurance appeals.
- Academy for Eating Disorders Partner — Collaborated on the STRIPED Report: Economic Costs of Eating Disorders and related publication.
- Academy for Eating Disorders Partner — Collaborated with AED and other organizations in shaping CARF accreditation standards for eating disorder treatment programs.
- Acorn Health Partner — Representative from Acorn Health serves on the Advisory Board
- Ai Pono Hawaii Partner — Member organization of REDC Consortium providing residential and outpatient eating disorder treatment in Hawaii
- Alliance for Eating Disorders Partner — Collaborated to study availability of care options for youth nationwide.
- Alsana Partner — Representative from Alsana serves on the Standards Committee
- Alsana: An Eating Recovery Community Partner — Member organization of REDC Consortium operating 10 locations nationwide offering eating disorder treatment through the Alsana Adaptive Care Model™
- BALANCE Eating Disorder Treatment Center Partner — Member organization of REDC Consortium offering outpatient eating disorder care in New York City with virtual and in-person programs
- Backcountry Wellness Partner — Member organization of REDC Consortium providing eating disorder treatment services in Greenwich, CT and Providence, RI across multiple levels of care
- Balance Eating Disorder Treatment Center Partner — Representative from Balance Eating Disorder Treatment Center serves on the Board of Directors
- Bannister Consultancy Partner — Representative from Bannister Consultancy serves on the Advisory Board
- CARF Government — Accreditation body that REDC member programs are required to maintain status with.
- Center For Change Partner — Member organization of REDC Consortium providing a full continuum of eating disorder treatment in Utah and Idaho
- Center For Discovery Partner — Member organization of REDC Consortium offering residential eating disorder treatment for adolescents and adults across multiple states
- Center for Change Partner — Representative from Center for Change serves on the Ethics Committee
- Center for Discovery Partner — Representatives from Center for Discovery serve in leadership and committee roles
- Commission on Accreditation of Rehabilitation Facilities International Partner — Collaborated with CARF to develop eating disorders-specific accreditation standards included in the 2013 Behavioral Health Standards Manual.
- Commission on Accreditation of Rehabilitative Facilities Government — Accreditation agency that has incorporated REDC-endorsed eating disorder treatment standards into its accreditation programs.
- Eating Disorders Coalition Coalition — Member organization that supports the Eating Disorders Coalition's efforts to educate Congress on eating disorders as a public health issue.
- Eating Disorders Coalition for Research, Policy, and Action Coalition — Member organization advocating for mental health parity and policy reform, contributing to passage of the 21st Century Cures Act.
- Eating Recovery Center Partner — Member organization of REDC Consortium and national eating disorder treatment system with research and clinical infrastructure
- Eating Recovery Center Partner — Representatives from Eating Recovery Center hold multiple committee and board positions
- Farrington Specialty Centers Partner — Member organization of REDC Consortium providing outpatient, IOP, and PHP eating disorder treatment in Northeastern Indiana
- Farrington Specialty Centers Partner — Representative from Farrington Specialty Centers serves on the Standards Committee
- Focus Treatment Centers Partner — Member organization of REDC Consortium offering residential and outpatient treatment for eating disorders and substance use disorders
- Focus Treatment Centers Partner — Representative from Focus Treatment Centers serves on the Standards Committee
- Galen Hope Partner — Member organization of REDC Consortium providing partial hospitalization, supported housing, and IOP for eating disorders and dual diagnosis in Florida
- Harvard STRIPED Partner — Collaborating on research to study national availability of eating disorder treatment programs.
- Inner Haven Wellness Partner — Member organization of REDC Consortium offering eating disorder treatment for adolescents and adults in Wisconsin
+ 19 more
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Collaborative Research to Inform Policy and Practicemethodology: collaborative_researchBy conducting research in partnership with members and external organizations, the consortium generates credible evidence that improves access and quality of care because shared inquiry builds field-wide legitimacy and drives systemic change.
- Member-Led Advocacy with Strategic Tool Supportmethodology: member_led_advocacyBy equipping member organizations with advocacy tools and facilitating coordinated policy action, the consortium amplifies impact on insurance and treatment access policies because collective, supported advocacy is more effective than isolated efforts.
- Multidisciplinary Team Model for Comprehensive Treatmentmethodology: multidisciplinary_team_careBy integrating psychiatric, psychotherapeutic, nutritional, and medical expertise into a coordinated team approach, the organization improves treatment outcomes because eating disorders require simultaneous intervention across multiple clinical domains.
- Personalized, Evidence-Based Clinical Caremethodology: evidence_based_personalized_careBy delivering individualized and evidence-based treatment, the organization produces more effective outcomes in eating disorder recovery because care must be clinically rigorous and tailored to each patient's unique medical and psychological needs.
- Stepped-Care and Least Restrictive Setting Modelmethodology: stepped_care_modelBy placing patients in the least restrictive appropriate level of care and enabling step-up or step-down transitions based on clinical progress, the organization optimizes engagement and recovery because flexibility reduces unnecessary institutionalization and supports gradual stabilization.