named programs · 3 · from sources
What they call their work
Ataxia Conference Frankfurt
Supports international collaboration and knowledge exchange among ataxia researchers and clinicians through conference funding.
Directed Research Program
Funds scientific research at academic and medical institutions to advance understanding and treatment of Friedreich's ataxia, including therapeutic development and clinical validation studies.
Nourish Together: Building a Healthy Community
Supports nutrition services for individuals with serious illnesses through Food and Friends, a community-based organization in Washington, D.C.
activities · 3 groups
What they do
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Genetic and Neurological Disease Research Funding 3 activities
- Funding directed research programs for Friedreich's ataxiaProvides grants to academic and research institutions worldwide to support targeted scientific research on Friedreich's ataxia, including therapeutic development and disease mechanisms. Recipients include the Friedreich's Ataxia Research Alliance, University of Oxford, McGill University, Stanford University, University of Sheffield, and others.
- Funding international ataxia research conferencesSupports knowledge exchange and collaboration in the ataxia research field through grants to host the Ataxia Conference Frankfurt, awarded to Universitätsklinikum Aachen.
- Funding validation and development of clinical tools and models for Friedreich's ataxiaSupports the advancement of diagnostic and therapeutic assessment methods through grants for instrumented measure validation and experimental therapeutics testing, including work at Murdoch Children's Research Institute and zebrafish model studies at Children's Hospital of Philadelphia.
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Charitable Grantmaking to Specific Causes 1 activity
- Funding community nutrition programsProvides financial support for community-based nutrition initiatives, including the "Nourish Together" program operated by Food and Friends.
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Hospital and Medical Center Support 1 activity
- Funding specialized medical services for pediatric ataxiaFinances the maintenance of the pediatric ataxia service at the National Hospital for Neurology and Neurosurgery via a grant to University College London Institute of Neurology, supporting clinical care and expertise in childhood ataxia disorders.
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financials · form 990PF · fy2024
revenue
Total revenue$5.02M
Contributions & grants$5.44M108%
Program service revenue——
Investment income$24K0%
Other revenue—
expenses
Total expenses$508K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits$0
Grants paid out$5.08M
balance sheet
Total assets$4.84M
Cash—
Investments—
Liabilities—
Net assets$4.75M
3 years on record · 2020–2024 · YoY revenue -1.6%
leadership · form 990 part vii · fy2024
Who runs it
board members · 2
- BERNARD BRENNINKMEIJER — VICE PRESIDENT/DIRECTOR
- THOMAS BRENNINKMEIJER — PRESIDENT/DIRECTOR
relationships · 11
Who they work with
- CHILDRENS HOSPITAL OF PHILADELPHIA Partner — Receives funding from The Christina Foundation for testing experimental therapeutics in zebrafish models of Friedreich ataxia.
- FANNIN INNOVATION STUDIO Partner — Receives funding from The Christina Foundation for research on raptamers in Friedreich's ataxia.
- FOOD AND FRIENDS Partner — Receives funding from The Christina Foundation for the Nourish Together community health initiative.
- FRIEDREICH'S ATAXIA RESEARCH ALLIANCE Partner — Receives funding from The Christina Foundation for directed research programs on Friedreich's ataxia.
- MCGILL UNIVERSITY Partner — Receives funding from The Christina Foundation for directed research programs on Friedreich's ataxia.
- MURDOCH CHILDREN'S RESEARCH INSTITUE Partner — Receives funding from The Christina Foundation to validate instrumented measures in Friedreich ataxia.
- STANFORD UNIVERSITY Partner — Receives funding from The Christina Foundation for developing small molecule therapeutics for Friedreich's ataxia.
- THE UNIVERSITY OF SHEFFIELD Partner — Receives funding from The Christina Foundation for directed research programs on Friedreich's ataxia.
- UNIVERSITATSKLINIKUM AACHEN Partner — Receives funding from The Christina Foundation for the Ataxia Conference Frankfurt.
- UNIVERSITY COLLEGE LONDON INSTITUTE OF NEUROLOGY Partner — Receives funding from The Christina Foundation to maintain the pediatric ataxia service at NHNN.
- UNIVERSITY OF OXFORD Partner — Receives funding from The Christina Foundation for directed research on Friedreich's ataxia.