What they reported doing
- #1 primary $406KGenetics Counseling Program: This program provides a community based approach that aims to make genetic risk assessment and genetic counseling to underserved communitites.
- #2 $0Other Programs: An educational website is available to provide information for professionals and the public about the causes, medical evalutation and treatment options for individuals and couples facing infertility.
What they call their work
What they do
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Infertility Support and Assisted Reproductive Services 2 activities
- Maintain educational website on infertilityOperates an educational website offering information on causes, medical evaluation, and treatment options for individuals and couples facing infertility.
- Operate Pregnancy Risk Network (PRN) teratogen information serviceProvided medical information to clients and providers facing complex reproductive health decisions through the Pregnancy Risk Network (PRN), a teratogen information service, from 2002 to 2024.
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Direct Clinical Care Services 1 activity
- Provide genetic counseling services to medical providersDelivers genetic counseling services to medical providers across 30 counties in upstate New York.
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Who runs it
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| Luba Djurdjinovic MS | Executive Director | 50 | $71K |
- Dennis A First — Director
- Diane Faubion — Treasurer
- Donald J Sommerville BA MBA — Director
- Erin Houghton MS CGC — Director
- James Terzian MD FCAP — President
- Jane Greenlaw BSN MS JD — Secretary
- Joan Scott MS — Director
Who they work with
- American College of Obstetricians and Gynecologists Government — Dr. Murray Nusbaum served as Medical Advisor to ACOG for New York State, indicating an official professional affiliation.
- Health Resources and Services Administration Government — Funds the NYMAC Regional Genetics Network project through the Genetic Services Branch of the HRSA Maternal and Child Health Bureau.
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Collaborative Clinical Modelmethodology: collaborative_clinical_modelBy involving referring healthcare providers in the genetic evaluation and testing process, we improve patient care and advance practitioner education, because shared clinical responsibility enhances coordination, trust, and knowledge transfer.
- Community-Based Service Deliverymethodology: community-based_service_deliveryBy delivering genetic risk assessment and counseling through community-based channels, we increase access for underserved populations, because localized, trust-based settings reduce structural and cultural barriers to care.