named programs · 2 · from sources
What they call their work
Community Education and Outreach
Provides culturally tailored education about blood stem cell donation, focusing on South Asian and other underrepresented communities to increase donor diversity
Stem Cell Donor Registry Drive
Organizes and conducts donor registration events at schools, religious institutions, conferences, and private gatherings to enroll individuals in the national and international stem cell donor registries
activities · 2 groups
What they do
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Blood and Marrow Donation Drives 4 activities
- Facilitates bone marrow and hematopoietic stem cell donations for patients in needCoordinates and enables life-saving bone marrow and hematopoietic stem cell transplants for patients with blood disorders and leukemia, including international cases in Israel, Brazil, and Singapore.
- Organizes stem cell and marrow donor registration drivesConducts outreach and registration drives at colleges, universities, conferences, religious institutions, and private residences to enroll potential marrow donors, including through partnerships with organizations like the National Marrow Donor Program and DKMS.
- Recruits and registers South Asian marrow donors for national and international registriesFocuses on increasing representation of South Asians in marrow donor databases, achieving the largest global enrollment of South Asian donors for the Be The Match Registry.
- Trains and equips volunteers to conduct donor registration drivesProvides free educational materials and training to volunteers to empower them to organize and run stem cell donor registration drives independently.
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Cancer Peer Support & Wellness Programs 1 activity
- Provides support services for patients and families affected by blood disordersOffers emotional and community support through patient and family support groups and organizes meetings between patients and donors to foster connection and encouragement.
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financials · form 990EZ · fy2022
revenue
Total revenue$6K
Contributions & grants$6K100%
Program service revenue——
Investment income$90%
Other revenue—
expenses
Total expenses$21K
Program expenses100%
Admin / overhead0%
Fundraising0%
Salaries & benefits$12K
Grants paid out—
Largest expense lineCompensation
balance sheet
Total assets$66K
Cash$146K
Investments$0
Liabilities$38K
Net assets$66K
Liquid reserves85.2 mo
2 years on record · 2020–2022 · YoY revenue -79.5%
leadership · form 990 part vii · fy2022
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| RAFIYA PEERBHOY KHAN | PRESIDENT | 30 | $12K |
board members · 2
- NIDHA MUBDI — TRUSTEE
- S SAEED RAZA — TRUSTEE
relationships · 10
Who they work with
- Boston University Partner — Partnered with SAMAR for marrow donor registration drives.
- DKMS Partner — Collaborates with DKMS to promote marrow donor registration and support the fight against blood cancer.
- DKMS Partner — Collaborates with DKMS, an international nonprofit, to fight blood cancers and disorders and provide donors for patients in need.
- DKMS Partner — Partnered with DKMS in February 2022 to follow NMDP and HIPAA-compliant information handling practices.
- Harvard Partner — Partnered with SAMAR for marrow donor registration drives.
- National Marrow Donor Program Network — Registered as an official recruitment group with the National Marrow Donor Program on August 18, 1995.
- National Marrow Donor Program Network — SAMAR registrants are listed in the NMDP registry; Dinesh registered via an NMDP donor drive sponsored by SAMAR.
- National Registry Network — Registers donors into the National Registry for blood stem cell and marrow transplants.
- New York University Partner — Partnered with SAMAR for marrow donor registration drives.
- Rutgers Partner — Partnered with SAMAR for marrow donor registration drives.
strategies · 5
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Community-Led Recruitment Modelmethodology: community-led_recruitmentBy empowering student and community leaders to lead donor registration drives, we achieve broader and more sustainable outreach because peer-led initiatives foster trust and mobilize networks more effectively than top-down campaigns.
- Culturally Informed Community Engagementmethodology: culturally_informed_outreachBy leveraging cultural and linguistic understanding of South Asian communities, we increase engagement in marrow donor registration because trust and relatability improve participation rates in historically underrepresented populations.
- Diverse Registry Expansion Through Strategic Partnershipsmethodology: diverse-registry-recruitmentBy partnering with organizations across the U.S., we increase the representation of ethnically diverse donors in the national registry, thereby improving the likelihood of matches for patients of similar backgrounds because genetic compatibility is strongly linked to shared ancestry.
- Donor Registration Campaigns to Improve Patient Outcomesmethodology: donor_registration_campaignBy increasing the number of registered marrow donors, we improve patient outcomes in the fight against blood cancer because a larger, more diverse registry increases the probability of finding a matching donor for every patient in need.
- Universal Access to Transplantsmethodology: universal_accessBy advocating for and facilitating access to blood stem cell and marrow transplants regardless of race or ethnicity, we address systemic disparities in transplant availability because equitable access improves survival rates among underrepresented patient groups.