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THE MONIQUE TARTT FOUNDATION INC
HAUPPAUGE, NY · EIN 472945565 · Form 990EZ · FY2021 · NTEE H12 · Medical Research · Micro (<$100K) · moniquetartt.org
revenue
$15K
expenses
$13K
net assets
$7K
employees
—
mission · from form 990

Established to spread awareness about Hemophagocytic Lymphohistiocytosis (HLH).

profile · synthesized from sources

The Monique Tartt Foundation was established in memory of Monique "Momo" Tartt, who died in 2014 from Hemophagocytic Lymphohistiocytosis (HLH) at age 18. The foundation raises awareness about HLH, supports research at the Cincinnati Children’s HLH Center of Excellence, and funds community initiatives including a high school scholarship and pediatric palliative care at Stony Brook Children’s Hospital. All operations are run by volunteers.

named programs · 3 · from sources

What they call their work

Palliative Care Support Program
Support for the pediatric palliative care program at Stony Brook Children’s Hospital, which addresses the physical, emotional, and spiritual needs of children and families facing life-threatening illnesses
Team Momo 5K Participation
Annual participation in the Liam’s Lighthouse Foundation 5K to Fight Histo, raising funds for HLH research and awareness
The Monique Tartt Scholarship Fund
Annual scholarship awarded to a graduating senior in the Chamber Choir at Hauppauge High School who embodies school spirit, respect, and a commitment to helping others
activities · 4 groups

What they do

  • Pediatric Medical Care and Research Support 2 activities
    • Funding research and treatment for HLH
      Raises and directs funds to support HLH research and treatment development at The HLH Center of Excellence at Cincinnati Children’s Hospital, which serves more HLH patients annually than any other pediatric hospital globally.
    • Supporting pediatric palliative care services
      Provides financial and organizational support to the Pediatric Palliative Care Program at Stony Brook Children’s Hospital to improve quality of life for children and families facing life-threatening illnesses.
  • Local High School Scholarship Programs 1 activity
    • Awarding the Monique Tartt Scholarship
      Funds and awards an annual scholarship to a graduating senior from the Hauppauge High School Chamber Choir, having raised over $10,000 since its establishment. The scholarship has been awarded annually since 2014.
  • Blood and Marrow Donation Drives 1 activity
    • Conducting HLH awareness and education initiatives
      Runs awareness and education programs targeting both communities and physicians about Hemophagocytic Lymphohistiocytosis (HLH), including the importance of blood and bone marrow donation. Activities are conducted locally and supported by volunteer labor.
  • Community Event Fundraising 1 activity
    • Conducting local fundraising for families in need
      Organizes and carries out local fundraising efforts to provide direct support to community families facing hardship, including participation in the LLF 5K to Fight Histo event, which has raised over $5,000 annually since 2014.
financials · form 990EZ · fy2021
revenue
Total revenue$15K
Contributions & grants$15K100%
Program service revenue$00%
Investment income$270%
Other revenue—
expenses
Total expenses$13K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out—
balance sheet
Total assets$7K
Cash—
Investments—
Liabilities—
Net assets$7K
2 years on record · 2020–2021 · YoY revenue +12.6%
relationships · 9

Who they work with

  • Cincinnati Children's Hospital Partner — Collaborates on research through The HLH Center of Excellence
  • Cincinnati Children's Hospital Partner — Collaborates with specialists who treat the highest number of HLH cases annually.
  • Cincinnati Children's Hospital Medical Center Partner — Partner organization providing specialized care for HLH
  • Cincinnati Children’s Hospital Partner — Funds the HLH Center of Excellence for treatment and research.
  • Liam's Lighthouse Foundation Partner — Partner nonprofit organization supporting families affected by HLH
  • Liam’s Lighthouse Foundation Partner — Partners with LLF by participating in their 5K to Fight Histo fundraising event and supporting their mission to fund HLH research and physician education.
  • New York Blood Center Partner — Partner organization for blood donation and transfusion services
  • Stony Brook Children's Hospital Partner — Partner organization providing pediatric care and services
  • Stony Brook Children’s Hospital Partner — Supports the Pediatric Palliative Care Program to enhance quality of life for children and families.
strategies · 4

How they approach the work

Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.

  • Awareness Through Education to Enable Early Identification of HLH
    methodology: awareness-through-education
    By spreading education and awareness about Hemophagocytic Lymphohistiocytosis (HLH) among medical professionals and the public, the foundation aims to enable earlier diagnosis and improve outcomes, because early identification is critical to effective treatment of this rare and rapidly fatal condition.
  • Integrated Family Support and Research Funding Model
    methodology: integrated_family-research_support
    By combining direct support for families affected by HLH with strategic funding for medical research, the foundation strengthens both immediate care and long-term solutions, because addressing the human and scientific dimensions together creates a more effective response to rare diseases.
  • Legacy-Based Scholarship Reinforcing Community Values
    methodology: legacy-based scholarship with cultural values
    By offering scholarships to high school choir students rooted in Monique Tartt’s legacy, the foundation promotes enduring cultural values such as joy, mutual respect, and Ohana (family), because perpetuating positive community norms through music and education strengthens social cohesion and inspires future generations.
  • Targeted Funding of Specialized Medical Centers
    methodology: specialized-medical-center-funding
    By directing donated funds to specialized medical centers with high-volume expertise in HLH, the foundation increases the impact of research and treatment advances, because concentrated investment in centers of excellence accelerates progress more effectively than diffuse funding.