irs program accomplishments · form 990 part iii · fy2025
What they reported doing
- #1 primary $209KCOMMUNITY EVENTS: IN ADDITION TO WEEKEND RESPITE, WE PROVIDE COMMUNITY PROGRAMMING OPPORTUNITIES. THE MORE REGULAR THEIR RESPITE, THE MORE PARENTS ARE ABLE TO DEAL WITH STRESS, THUS PREVENTING POTENTIAL HEALTH AND FAMILY BREAKDOWNS. FAMILIES ARE INVITED TO EVENTS SUCH AS THE CAREGIVER SUMMIT AND WELLENESS RETREAT, VALENTINE'S DAY DATE, NOURISHING YOU MOM'S RETREAT, HALLOWEEN EVENT, DAD'S DAY AND MORE. IN ADDITION, THERE ARE PROGRAM TEAM COLLABORATIONS TO INCLUDE COUPLES RETREATS, MINI RETREAT OVERNIGHT AND BURNOUT RETREAT. THISSERVICE TOUCHED OVER 1580 CAREGIVERS IN 2025.
- #2 $184KWELLNESS PROGRAMMING: WE PROVIDE A WELLNESS EDUCATION INCLUDING ACCESS TO MENTAL HEALTH SERVICES FOR THE FAMILIES SERVED BY DAVID'S REFUGE. THIS YEAR ROUND PROGRAMMING IS OFFERED THROUGH WELLNESS PARTNERS IN THE CNY COMMUNITY AND IS OFFERED IN PERSON AND VIRTUALLY. OVER 230 CAREGIVERS PARTICIPATED IN 2025.
named programs · 4 · from sources
What they call their work
Community Events
Year-round events including Caregiver Summit, Wellness Retreat, Valentine's Day Date, Dad's Day, and Halloween events to reduce social isolation and build community.
Reimbursement Respite
Alternative respite option for caregivers with extenuating circumstances preventing participation in standard respite weekends; provides reimbursement for self-arranged stays.
Tried-and-True Respite Weekend
Overnight respite program offering two free nights at partner hotels or bed-and-breakfasts, including meals and gifts, for caregiving couples or single parents.
Wellness Programming
Year-round wellness education and access to mental health services offered in person and virtually through community partners in Central New York.
activities · 6 groups
What they do
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Direct Financial Assistance to Individuals 1 activity
- Financial support for respite and childcareOffers direct financial assistance to families during respite stays, including up to $200 in funding for childcare sent directly to providers, and reimbursement of up to $200 for one-night or $400 for two-night stays to cover lodging and meal expenses.
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Inclusive Social & Recreational Events 1 activity
- Ongoing community engagement and family eventsHosts recurring in-person and virtual events for caregiver families and the broader community, including Halloween celebrations, "Cookies with Santa," craft nights, and the Pineview Champion Challenge, designed to reduce social isolation and foster connection.
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Chaplaincy and Spiritual Care Services 1 activity
- Post-respite follow-up and affirmationSends Welcome Boxes and other affirming gifts to families after their respite stay, along with spiritual encouragement through prayer, handwritten notes, and phone calls upon request.
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Respite Care for Developmental Disabilities 1 activity
- Respite weekends for caregiver couplesProvides one complimentary respite weekend per year to couples who are caregivers of children with special needs or life-threatening medical conditions, including two nights of lodging, meals, and gifts. Host support is provided through coordination with innkeepers, pre-stay communication, in-person greeting, and shared breakfasts.
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Caregiver Support for Dementia and Aging 1 activity
- Specialized retreats and summitsHosts targeted retreats such as the caregiver burnout retreat in Oswego, NY, featuring expert-led workshops and overnight accommodations, as well as caregiver summits that bring together large groups for education and peer support.
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Community Wellness Movement Classes 1 activity
- Year-round wellness programming for caregiversOperates a comprehensive wellness initiative offering in-person and virtual workshops, counseling, fitness classes, and educational series in yoga, meditation, breathwork, mindfulness, nutrition, and mental health for caregivers of children with special needs.
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financials · form 990 · fy2025
revenue
Total revenue$1.72M
Contributions & grants$1.63M94%
Program service revenue$00%
Investment income$83K5%
Other revenue$15K
expenses
Total expenses$1.26M
Program expenses64%
Admin / overhead8%
Fundraising28%
Salaries & benefits$606K
Grants paid out$0
Largest expense lineCompensation
balance sheet
Total assets$3.98M
Cash$139K
Investments$3.76M
Liabilities$20K
Net assets$3.96M
Liquid reserves37.0 mo
6 years on record · 2020–2025 · YoY revenue +37.6%
leadership · form 990 part vii · fy2025
Who runs it
paid leadership · 1
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| KATE HOUCK | EXECUTIVE DIRECTOR | 40 | $105K |
board members · 14
- ALISON XUAN HA — DIRECTOR
- APRIL BRISSETTE — TREASURER
- ASHLEY CHAYKA — DIRECTOR
- CRAIG ZINSERLING — DIRECTOR
- JAMES GODLESKI — PRESIDENT THROUGH 10/2025
- JESSICA CHARBONEAU — VICE PRESIDENT
- KELLY BUCK — DIRECTOR
- MATT WILLIS — DIRECTOR
- MEGHAN REAP — DIRECTOR
- PATRICK ROHE — DIRECTOR
- PIERRE MORRISSEAU — DIRECTOR
- SCOTT JOHNSON — SECRETARY
- WARREN PFOHL — DIRECTOR
- WILLIAM KIRCHOFF — PRESIDENT AS OF 11/2025
relationships · 39
Who they work with
- 1000 Islands Harbor Hotel Partner — Partner location for respite program in Clayton, NY
- 1897 Beekman House Partner — Partner location for respite program in Dundee, NY
- Acorn Inn Partner — Partner location for respite program in Canandaigua, NY
- Amazon Partner — Partners with Amazon to manage a public wishlist for in-kind donations of goods.
- Batten Disease Support and Research Association (BDSRA) Partner — Collaborates with and refers to BDSRA for additional information on Batten Disease.
- Bekah Andre Partner — Point of contact for Pineview Champion Challenge event coordination.
- Best Western Plus Oswego Hotel Partner — Partner location for respite program in Oswego, NY
- Brae Loch Inn Partner — Partner location for respite program in Cazenovia, NY
- Buffalo Harmony House Partner — Partner location for respite program in Buffalo, NY
- CNY Community Wellness Partners Partner — Collaborates with local wellness partners in the CNY community to deliver mental health and wellness services.
- Chautauqua Harbor Hotel Partner — Partner location for respite program in Celoron, NY
- Colgate Inn Partner — Partner location for respite program in Hamilton, NY
- Dr. Kaushal B. Nanavati, MD, ABOIM, FAAFP, ABIHM, Cert. PH Partner — Assistant Dean of Wellness and Director of Integrative Medicine supporting David's Refuge wellness programs.
- Emily Tills, MS, RDN, CDN Partner — Registered Dietitian and Virtual Nutrition Coach offering nutrition services via David's Refuge.
- Fayetteville YMCA Partner — Collaborating partner for the Halloween celebration event.
- Hampton Inn & Suites at Lake Placid Partner — Partner location for respite program in Lake Placid, NY
- Homewood Suites by Hilton Ronkonkoma Partner — Partner location for respite program in Ronkonkoma, NY
- Liz Sheen, RN Partner — Board Certified Holistic Nursing and Wellness Coach providing services through David's Refuge wellness initiative.
- Marriot Downtown Syracuse Partner — Partner location for respite program in Syracuse, NY
- Meg Thomas Partner — Sound Healing, Yoga, Breathwork, and Retreat Leader contributing to wellness events.
- Melissa Carman, PhD, LMHC Partner — Mental Health Counselor providing virtual counseling through David's Refuge.
- Moonshadow Bed and Breakfast Partner — Partner location for respite program in Hammondsport, NY
- Naples Hotel Partner — Partner location for respite program in Naples, NY
- Pineview Run Champion Challenge Partner — Annual event partner supporting David's Refuge through community engagement and fundraising.
- Pineview Run: Auto & Country Club Partner — Host venue for the Pineview Champion Challenge fundraising event.
- Respite Weekend Host Partner — Trained families from the David’s Refuge community who host respite weekends and facilitate connection among caregivers.
- River Spring Lodge Partner — Partner location for respite program in Darien Center, NY
- Samantha Haun Partner — Certified Yoga Teacher and Energy Worker collaborating with David's Refuge on wellness programming.
- Skaneateles Field Resort and Spa Partner — Partner location for respite program in Skaneateles, NY
- Tailwater Lodge Partner — Partner location for respite program in Altmar, NY
+ 9 more
strategies · 4
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Caregiver-First Theory of Changemethodology: caregiver-first support modelBy strengthening caregiver well-being through respite, self-care, and wellness education, the organization enables sustainable family functioning and community health, because resilient caregivers are foundational to resilient families and inclusive communities.
- Community-Building to Reduce Isolationmethodology: community_supported_wellnessBy creating shared experiences through community-partnered events and peer connection, the organization reduces social isolation among caregivers, because structured communal engagement fosters belonging and long-term resilience.
- Faith-Integrated Care Modelmethodology: faith-integrated-supportBy integrating spiritual practices such as prayer and personalized gift-giving into support services, the organization affirms dignity and belonging, because spiritual recognition enhances emotional and psychological well-being for families facing profound loss.
- Peer-Supported Respite Modelmethodology: peer_support_networkBy providing respite care hosted by volunteer caregivers with lived experience, the organization fosters empathetic support and meaningful connections that enhance emotional well-being, because shared experience increases trust, reduces isolation, and promotes resilience.