named programs · 3 · from sources
What they call their work
2024 ARF Golf Tournament
Fundraising golf event held to support the foundation’s mission of advancing AFE research and maternal health
Annual Grant Program
Distributes funds to organizations supporting amniotic fluid embolism research, maternal and infant medical care, and family support services
Tour de Ali
Annual fundraising cycling event in honor of Alison Rose Waclawek to raise awareness and support for AFE research
activities · 3 groups
What they do
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Charitable Grantmaking to Specific Causes 1 activity
- Funding amniotic fluid embolism research and maternal/infant medical careProvides grants to organizations supporting amniotic fluid embolism (AFE) research, awareness, and medical care for mothers and infants. Since inception, has awarded over $340,000 in total grants, including specific awards such as $45,000 to the AFE Foundation in 2025 and multi-year commitments to children’s hospitals.
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Blood and Marrow Donation Drives 1 activity
- Hosting community blood drivesOrganizes annual blood drives in partnership with local entities, collecting hundreds of units of blood across multiple years; for example, over 80 units were collected in both 2025 and 2026. The organization has implemented donor incentive campaigns, such as "A pint for a pint," offering gift cards to increase participation.
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Charity Golf Tournament Fundraiser 1 activity
- Organizing fundraising events to support maternal and infant healthHosts recurring fundraising events including an annual golf tournament, cycling event (Tour de Ali), wine night, and days of giving. These events generate significant contributions through registration fees, sponsorships, raffles, and donations—raising over $47,000 in 2024, $40,000 in 2025, and nearly $9,000 at the 2026 Tour de Ali alone.
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financials · form 990EZ · fy2025
revenue
Total revenue$85K
Contributions & grants$20K23%
Program service revenue——
Investment income——
Other revenue—
expenses
Total expenses$87K
Program expenses—
Admin / overhead—
Fundraising—
Salaries & benefits—
Grants paid out$85K
balance sheet
Total assets$24K
Cash—
Investments—
Liabilities—
Net assets$24K
6 years on record · 2020–2025 · YoY revenue +43.0%
leadership · form 990 part vii · fy2025
Who runs it
board members · 1
- PHILIP S OCCHINO — Trustee
relationships · 36
Who they work with
- Accessium Group Partner — Major sponsor of the 2024 annual golf tournament, supporting lunch, beverage/snack carts, and the hole in one contest.
- Amniotic Fluid Embolism (AFE) Foundation Partner — Funding recipient for AFE research and awareness initiatives
- Amniotic Fluid Embolism (AFE) Foundation Partner — Primary grant recipient focused on research and awareness of amniotic fluid embolisms.
- BBQ Shack Partner — Catered barbeque lunch for participants at the 2026 Tour de Ali event.
- Barnard Chevrolet Partner — Sponsor of the 2025 Tour de Ali event
- Big Ditch Partner — Provided gift cards as part of the "A pint for a pint" donor incentive campaign.
- Brookfield Country Club Partner — Host venue for the Alison Rose Foundation's annual golf tournament.
- Brookfield Country Club Partner — Hosted the 2025 Alison Rose Foundation Golf Tournament event.
- Cencora Partner — Major sponsor of the 2024 annual golf tournament, supporting lunch, beverage/snack carts, and the hole in one contest.
- Cheryl Reinhart Partner — Major sponsor of the 2024 annual golf tournament, supporting lunch, beverage/snack carts, and the hole in one contest.
- Connect Life Partner — Partner organization that staffed the blood drive to collect donations.
- Connect Life Partner — Partner organization whose staff donated time and efforts to support the blood drive.
- Daemen University Partner — Hosted the 2025 Alison Rose Memorial Blood Drive and Fundraiser at its Scott Beiler College of Health Professions Gym.
- Daemen University Partner — Hosted the event at the Scott Beiler Center for Health and Wellness.
- David Morgante, Jr. and Family Partner — Sponsor of the 2025 Tour de Ali event
- F.F. Thompson Hospital Partner — Received grant from ARF in 2025.
- F.F. Thompson Hospital Partner — Recipient of grant funding to support expansion of the Birthing Center and maternal-infant care
- Geneva General and Soldiers and Sailors Hospitals Partner — Received joint grant from ARF in 2024.
- Golisano Children’s Hospital of Rochester NY Partner — Received multi-year funding commitments from ARF for pediatric care.
- Legacy Laundry, Inc. Partner — Sponsor of the 2025 Tour de Ali event
- Mercy Hospital Partner — Recipient of grant funding for postpartum hemorrhage carts to improve maternal care
- Mercy Hospital of Buffalo Partner — Received grant from ARF in 2025.
- Oishei Children’s Hospital of Buffalo Foundation Partner — Received grant funding from ARF for children’s health services.
- Parkview Health Services Partner — Presenting sponsor of the 2024 annual golf tournament.
- SNMP Properties Partner — Sponsor of the 2025 Tour de Ali event
- Sisters Hospital Foundation Partner — Received grants from ARF for labor and delivery services.
- Snap On Tools Partner — Sponsor of the 2025 Tour de Ali event
- Sondra Berner - Howard Hanna Real Estate Partner — Sponsor of the 2025 Tour de Ali event
- Splash Car Wash Partner — Sponsor of the 2025 Tour de Ali event
- The Arc Erie County New York Partner — Received grant from ARF for its Preschool Education Program.
+ 6 more
strategies · 2
How they approach the work
Named approaches extracted from this org’s sources. Where others share an approach, follow it to see the full set of orgs running it.
- Event-Based Community Fundraisingmethodology: event-based_fundraisingBy organizing community events such as golf tournaments, wine tastings, and outdoor recreation activities, the foundation generates financial support and fosters sustained engagement because shared experiences strengthen emotional connection to the cause.
- Legacy-Driven Grantmakingmethodology: legacy-driven grantmakingBy funding research and awareness initiatives on amniotic fluid embolism, the foundation advances maternal health outcomes and honors the memory of Alison Rose Waclawek, leveraging personal legacy to sustain mission focus and donor engagement.