irs program accomplishments · form 990 part iii · fy2023
What they reported doing
- #1 primary $35.72MPUBLIC EDUCATION (SEE SCHEDULE O)PUBLIC EDUCATION - PEOPLE WITH MS CAN BETTER MANAGE THEIR DISEASE WHEN THEY HAVE THE SUPPORT AND UNDERSTANDING OF THE PEOPLE AROUND THEM-FROM DOCTORS TO EMPLOYERS TO FAMILY MEMBERS. THAT'S WHY WE WORK RELENTLESSLY TO TELL THE WORLD WHAT IT MEANS TO LIVE WITH MS. WE EDUCATE THE PUBLIC THROUGH THE SOCIETY'S AWARENESS CAMPAIGNS, PUBLIC SERVICE ANNOUNCEMENTS, AND MOMENTUM, WHICH IS THE SOCIETY'S FLAGSHIP MAGAZINE DISTRIBUTED QUARTERLY TO NEARLY 500,000 PEOPLE LIVING WITH MS, HEALTHCARE PROVIDERS, AND SUPPORTERS OF THE SOCIETY. WE SEND BIMONTHLY EMAILS WITH NEWS AND INFORMATION ABOUT MS TO 850,000 PEOPLE AND MORE THAN 6.2 MILLION PEOPLE VISIT THE SOCIETY'S WEBSITE EACH YEAR TO ACCESS INFORMATION AND SUPPORT AND GET INVOLVED.IN ADDITION, MANY PEOPLE GET ENGAGED IN CONVERSATIONS AND LEARN MORE ABOUT MS VIA THE SOCIETY'S SOCIAL MEDIA, WITH MORE THAN 1.1 MILLION FOLLOWERS.
- #2 $30.72MRESEARCH AND SCIENTIFIC STUDIES (SEE SCHEDULE O)RESEARCH AND SCIENTIFIC STUDIES - IN FISCAL 2024, THE SOCIETY INVESTED $31.2 MILLION TO SUPPORT 271 NEW AND ONGOING RESEARCH PROJECTS AROUND THE WORLD AIMED AT STOPPING MS IN ITS TRACKS, RESTORING FUNCTION, AND ENDING THE DISEASE FOREVER. THE SOCIETY ENGAGED 104 EXPERT SCIENTIFIC AND PEER REVIEWERS TO EVALUATE 369 PROPOSALS FOR RESEARCH GRANTS, FELLOWSHIPS AND EARLY CAREER AWARDS, COMMERCIAL RESEARCH AND DEVELOPMENT AGREEMENTS, AND TARGETED RESEARCH GRANTS. WE ALSO ENGAGED 15 LAY COMMUNITY REVIEWERS TO HELP THE SOCIETY IDENTIFY THE MOST PROMISING AND APPROPRIATE RESEARCH INVESTMENTS.RESEARCH PRIORITY AREAS TO DRIVE BREAKTHROUGHS TO A CURE INCLUDE: ACCELERATING PROMISING RESEARCH TO EMPOWER PEOPLE AFFECTED BY MS TO LIVE THEIR BEST LIVES AND ADVANCE THE PATHWAYS TO MS CURES ROADMAP, INCLUDING: STOPPING DISEASE ACTIVITY AND PROGRESSION THROUGH PRECISION MEDICINE AND EARLY DETECTION; RESTORING WHAT'S BEEN LOST BY REVERSING SYMPTOMS AND DISABILITY THROUGH REGENERATION AND FUNCTIONAL RECOVERY ENHANCED BY REHABILITATION AND WELLNESS; AND ENDING THE DISEASE THROUGH PREVENTION BY LIMITING EXPOSURE TO RISK FACTORS ACROSS THE POPULATION AND FOR THOSE MOST AT-RISK.
named programs · 3 · from sources
What they call their work
Advocacy Network
Mobilizes volunteers to influence policy and increase federal funding for MS research and services
MS Navigator Program
Provides personalized support to help people with MS navigate healthcare, insurance, and daily challenges
Research Programs
Funds global research initiatives aimed at understanding, treating, and ultimately curing MS
activities · 1 group
What they do
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Autoimmune Disease Research Funding 1 activity
- Multiple sclerosis research funding inferredThe organization funds research aimed at curing multiple sclerosis and improving understanding of the disease.This organization’s public records don’t describe its work in enough detail to extract activities, so this entry is a cautious inference from limited available metadata.
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financials · form 990 · fy2023
revenue
Total revenue$171.75M
Contributions & grants$164.09M96%
Program service revenue$00%
Investment income$6.66M4%
Other revenue$999K
expenses
Total expenses$169.08M
Program expenses71%
Admin / overhead9%
Fundraising20%
Salaries & benefits$94.30M
Grants paid out$30.20M
Largest expense lineCompensation
balance sheet
Total assets$201.12M
Cash$22.73M
Investments$112.01M
Liabilities$73.62M
Net assets$127.49M
Liquid reserves9.6 mo
5 years on record · 2019–2023 · YoY revenue +14.9%
leadership · form 990 part vii · fy2023
Who runs it
paid leadership · 16
| Name | Title | Hours/wk | Compensation |
|---|---|---|---|
| TAMI CAESAR THRU 122023 | CHIEF OPERATING OFFICER | 40 | $738K |
| CYNTHIA ZAGIEBOYLO | PRESIDENT & CEO (THRU 07/2024) | 40 | $644K |
| TIMOTHY COETZEE | PRESIDENT & CEO (AS OF 07/2024) | 40 | $449K |
| LISA GOLDFARB THRU 052024 | CHIEF PPL, VOL & COMM ENG OFFICER | 40 | $405K |
| BARI TALENTE | EVP, ADVOCACY & HEALTHCARE ACCESS | 40 | $336K |
| CYNTHIA BERTRANDO | CHIEF FINANCIAL OFFICER | 40 | $328K |
| JENNIFER LEE | EVP, DEVELOPMENT | 40 | $326K |
| PHYLLIS ROBSHAM THRU 072024 | EVP, COMMUNITY LEADERSHIP | 40 | $307K |
| WHITNIE GLADDEN | GENERAL COUNSEL | 40 | $297K |
| RON ZWERIN THRU 062024 | EVP, MKT, BRAND & COMMUNICATIONS | 40 | $285K |
| RONDA KRIER | EVP, TECHNOLOGY | 40 | $279K |
| BRUCE BEBO | EVP, RESEARCH | 40 | $271K |
| REBECCA FEHLIG | EVP, OPERATIONS (THRU 07/2024) | 40 | $231K |
| KAREN MARINER | EVP, PROGRAMS & SUPPORT | 40 | $216K |
| MISTY FLOWERS AS OF 062024 | EVP, FINANCE & OPERATIONS | 40 | $211K |
| GRAHAM MCREYNOLDS | FORMER AVP, GLOBAL INITIATIVES | 0 | $128K |
board members · 9
- ANDREA LINDSLEY — DIRECTOR (AS OF 11/2023)
- ANDY HARRIS — DIRECTOR
- BONNIE HIGGINS — VICE CHAIR
- CAROLINE WHITACRE — VICE CHAIR
- CHET POREMBSKI — DIRECTOR (THRU 11/2023)
- CHRIS CAMPBELL — DIRECTOR
- DANA M FOOTE — VICE CHAIR
- DAVID M ROTTKAMP — DIRECTOR
- DIANA TWADELL — SECRETARY